Evaluation of The Quality of Life in Children and Adolescents Inpatient Unite at Oncology: A Follow-Up Study

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Şentürk Pilan B., Erermiş H. S. , Kantar M., Ataseven E. , Özbaran N. B. , Bildik T.

6th SAYKAD CONGRESS International Health Related Quality of Life Meeting, İzmir, Turkey, 21 - 23 November 2019, pp.211-212

  • Publication Type: Conference Paper / Summary Text
  • City: İzmir
  • Country: Turkey
  • Page Numbers: pp.211-212


Objective: Today, long-term survival rates are reported in 80% of all children with cancer with advancing treatment methods (3,4). However, despite this improvement in treatment methods, cancer symptoms and treatment complications adversely affect the quality of life especially in children (5). The aim of this study was to evaluate the quality of life in children and adolescents hospitalized at Tülay Aktaş Oncology Hospital Pediatric Oncology Department and followed up by Child and Adolescent Psychiatry. 
Methods: Within the framework of consultation-liaison service between Ege University Department of Child and Adolescent Mental Health and Tülay Aktaş Pediatric Oncology Service, psychiatric support is provided to inpatient children and adolescents once a week. The Child and Adolescent Psychiatry specialist regularly meets with the patients thought to be in need by the treatment team. The Quality of Life Scale for Children (PedsQL) was administered to the subjects and their parents at the first interview and at the 6th month of the follow-up to evaluate the quality of life of the subjects. All patients were assessed using the Kiddie-Schedule for Affective Disorders and Schizophrenia (K-SADS). 
Results: The mean age of the 39 patients who participated in the study was 10 ± 4.63 and the age at first diagnosis was 9 ± 4.40. When the oncologic diagnosis of our cases were examined, bone tumors were first in 23.1% (n = 9), brain tumors in 17.9% (n = 7) and soft tissue sarcomas in 17.9% (n = 7) were second and leukemias in 15,4% (n=6) were third. Psychiatric diagnosis was found in 79.5% (n = 31) of the cases and the most common diagnosis was
depressive disorder with 51.3% (n = 20). There was no significant difference between the PedsQL scores of the children and adolescents at the first and sixth months. Among the PedsQL scores of the parents, Physical Functioning Score (PFS) (p = 0.004), Emotional Functioning Score (EFS) (p = 0.007), Social Functioning Score (SFS) (p = 0.004), Scale Total Score (STS) (p = 0.002), Psychosocial Health Total Score (PSHTS) (p = 0.004) was significantly higher in the sixth month interview than the first interview. The PedsQL School Functioning Score (p=0,002) and PSHTS (p=0,005) scores of children and adolescents were significantly lower in the patients who underwent surgery compared to those who did not undergo surgical operation. Parents EFS were significantly lower in those who had undergone surgery at the first interview (p = 0.045). Parental PFS and PSHTS at the sixth month were significantly lower in patients with recurrence than those without recurrence (p = 0.005, p = 0.032). In patients with a psychiatric diagnosis, the STS of the parents at the sixth month was significantly lower than those without a psychiatric diagnosis (p = 0.033). PFS in the sixth month was significantly lower in children with psychiatric diagnosis than in those without psychiatric diagnosis (p <0.001). 
Conclusion: In our study, it was noted that quality of life scale scores were better than the first interview in the sixth month according to parental perception. This may be related to the emotional state of the family at the time of diagnosis due to the new diagnosis of some patients, as well as the results of the psychosocial support and treatment provided by the multidispliner team to the family and the child during the process.