A National Registry of Thalassemia in Turkey: Demographic and Disease Characteristics of Patients, Achievements, and Challenges in Prevention


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Aydinok Y. , Oymak Y., Atabay B., Aydogan G., Yesılıpek A., Unal S., ...More

TURKISH JOURNAL OF HEMATOLOGY, vol.35, no.1, pp.12-18, 2018 (Journal Indexed in SCI) identifier identifier identifier

  • Publication Type: Article / Article
  • Volume: 35 Issue: 1
  • Publication Date: 2018
  • Doi Number: 10.4274/tjh.2017.0039
  • Title of Journal : TURKISH JOURNAL OF HEMATOLOGY
  • Page Numbers: pp.12-18
  • Keywords: Thalassemia, Hemoglobinopathies, Splenectomy, Registries, Iron chelators, beta-thalassemia mutations, Turkey, BETA-THALASSEMIA, AEGEAN REGION, PROLONGED SURVIVAL, IRON-DEFICIENCY, HEMOGLOBIN-S, ANEMIA, POPULATION, FREQUENCY, CHILDREN, SOUTH

Abstract

Objective: The Turkish Society of Pediatric Hematology set up a National Hemoglobinopathy Registry to demonstrate the demographic and disease characteristics of patients and assess the efficacy of a hemoglobinopathy control program (HCP) over 10 years in Turkey.