Pooling and expanding registries of familial hypercholesterolaemia to assess gaps in care and improve disease management and outcomes: Rationale and design of the global EAS Familial Hypercholesterolaemia Studies Collaboration

Vallejo-Vaz A. J. , Akram A., Seshasai S. R. K. , Cole D., Watts G. F. , Hovingh G. K. , ...More

ATHEROSCLEROSIS SUPPLEMENTS, vol.22, pp.1-32, 2016 (Journal Indexed in SCI) identifier identifier identifier


Background: The potential for global collaborations to better inform public health policy regarding major non-hypercholesterolaemia (FH), a common genetic disorder associated with premature cardiovascular disease, is yet to be reliably ascertained using similar approaches. The European Atherosclerosis Society FH Studies Collaboration (EAS FHSC) is a new initiative of international stakeholders which will help establish a global FH registry to generate large-scale, robust data on the burden of FH worldwide.